Advocacy

Pennsylvania Department of Health Brain Injury Advisory Board

The Traumatic Brain Injury (TBI) Advisory Board of the Pennsylvania Department of Health was established in August 2001 by the Secretary of Health as a requirement of the Health Resources and Services Administration Federal TBI Planning Grant and Federal Traumatic Brain Injury Act of 1996 (42 U.S.C.A. 300d - 52 et seq.) The board consists of 26 members including family members of TBI survivors; individuals living with a TBI; representatives from the departments of Aging, Human Services, Labor and Industry, Insurance, Health, Corrections and Education; representatives from the Disability Rights Pennsylvania, Rehabilitation and Communities Providers Association (RCPA), Brain Injury Association of Pennsylvania (BIAPA) and community-based organizations in TBI service provision and advocacy.

BIAPA Brain Injury Association of Pennsylvania

The Brain Injury Association participates in advocacy efforts on behalf of the brain injury community by participating in the Brain Injury Coalition and serving in an advisory capacity on policy issues.

Brain Injury Coalition

The Pennsylvania Brain Injury Coalition is a collaborative effort among individuals with brain injury, family members, the Brain Injury Association of Pennsylvania, the Rehabilitation and Community Providers Association of Pennsylvania and the Pennsylvania Athletic Trainers Society.  The Coalition has established caucuses in both the Pennsylvania House of Representatives and the Pennsylvania Senate, and works to keep them informed of legislative and policy issues that affect individuals with brain injury and their families.

Parent Advisor to BrainSTEPS Brain Injury School Consulting Program

The BrainSTEPS Program was created to build a bridge connecting the medical, rehabilitation, education sectors and families following student (K-12) acquired brain injury (ABI). ABIs can cause cognitive, physical, socio-emotional, and behavioral impairments that impact classroom performance and learning. In 2007, the Pennsylvania Department of Health established the BrainSTEPS Program to address this issue. BrainSTEPS consulting teams support school teams in the development and implementation of educational plans following student ABI. The original BrainSTEPS model in PA is currently funded by the PA Department of Health and the PA Department of Education, Bureau of Special Education, and is implemented by the Brain Injury Association of Pennsylvania. In 2017, BrainSTEPS was recognized by the Centers for Disease Control (CDC) as a national model for educational consultation supporting students and school teams in the development and implementation of educational supports and services following an acquired brain injury.

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